Hello fellow travelers!
I get asked occasionally (OK, I'll admit after almost four years and a lot of work and a lot of deprivation, I'm starting to wonder, but then I feel really good and forget all about it.) when this neuroplasticity is supposed to kick in. Pretty soon, I hope. I have all kinds of newly developed muscles being trained to make new connections in the brain. What I don't have is a "Plan B", in case "Plan A" doesn't work. You know, "There's always Plan B"? Well, I don't have one! I am feeling my way through the morass the best I can, retreat is not an option!
I start out these adventures humming, "Onward Christian Soldiers" but inevitably end up with Kiss's "Dr. Love" or something equally musicless stuck in my noggin on a loop. "Plan A"? "Plan B"? Who has time? The Nazis! That's who! The Nazis had all kinds of plans! All bad! And they were German. Germans like to make extensive plans.
In my particular case this is the life/death struggle. I am in the fight. My neurosurgeon won the first round (Thank you! Dr. Aliabadi!) but the rest of it is up to me! So "Plan A" has to work! "Plan B" means death so forget that! I only have a "Plan A" (and believe me when I say it's not much of a "plan", it's more like a hastily assembled bunch of "extreme" coping skills)
I tease a physician friend of mine that I'm a "patient of the future". And I'm only partly kidding because I am not reacting to this "condition" the way a lot of patients might, I'll never stop looking for answers I'll never stop fighting an unecessarily early demise, I was made for this. I'm not satisfied with anything offered to current patients. Scooters and catheters? Yuk! Motorized conveyances that cart your carcass ever-so-slowly up the staircase? Double Yuk!
The only answer for me is to continue to stretch and search for some kind of solution. One of the qualities that separates me from the average patient (if there is such a thing) is that I have no expectation that I will be the same as before the surgery. I have every expectation if I work hard enough, long enough I will keep changing into what I'm supposed to be. So "Plan A All the Way!" "A" is "American". "B" is for "Bruges" or "Belgium", either way "A" is better. So let's go with that!
I get asked occasionally (OK, I'll admit after almost four years and a lot of work and a lot of deprivation, I'm starting to wonder, but then I feel really good and forget all about it.) when this neuroplasticity is supposed to kick in. Pretty soon, I hope. I have all kinds of newly developed muscles being trained to make new connections in the brain. What I don't have is a "Plan B", in case "Plan A" doesn't work. You know, "There's always Plan B"? Well, I don't have one! I am feeling my way through the morass the best I can, retreat is not an option!
I start out these adventures humming, "Onward Christian Soldiers" but inevitably end up with Kiss's "Dr. Love" or something equally musicless stuck in my noggin on a loop. "Plan A"? "Plan B"? Who has time? The Nazis! That's who! The Nazis had all kinds of plans! All bad! And they were German. Germans like to make extensive plans.
In my particular case this is the life/death struggle. I am in the fight. My neurosurgeon won the first round (Thank you! Dr. Aliabadi!) but the rest of it is up to me! So "Plan A" has to work! "Plan B" means death so forget that! I only have a "Plan A" (and believe me when I say it's not much of a "plan", it's more like a hastily assembled bunch of "extreme" coping skills)
I tease a physician friend of mine that I'm a "patient of the future". And I'm only partly kidding because I am not reacting to this "condition" the way a lot of patients might, I'll never stop looking for answers I'll never stop fighting an unecessarily early demise, I was made for this. I'm not satisfied with anything offered to current patients. Scooters and catheters? Yuk! Motorized conveyances that cart your carcass ever-so-slowly up the staircase? Double Yuk!
The only answer for me is to continue to stretch and search for some kind of solution. One of the qualities that separates me from the average patient (if there is such a thing) is that I have no expectation that I will be the same as before the surgery. I have every expectation if I work hard enough, long enough I will keep changing into what I'm supposed to be. So "Plan A All the Way!" "A" is "American". "B" is for "Bruges" or "Belgium", either way "A" is better. So let's go with that!
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